Hypermobility specific research papers

1. Simmonds, 2019 (exercise) 
2. Scheper, 2016(muscle strength)
3. Rombaut, 2011(meds, surgery, PT) 
4. Nijs, 2006(chronic pain & fatigue) 
5. Berglund, 2010 (patient experiences) 
6. Paepe, 2012(EDS)
7. Castori, 2017(joint hypermobility) 
8. Csecs, 2022.(neurodivergence) 
9. Lohkamp, 2022 (UCI)
10. Russek, 2023 (UCI) 
11. Benistan, 2023 (compression garments) 
12. Pietri-Toro, 2023 ( cardiovascular manifestations) 
13. Estrella, 2023 (healthcare experiences) 
14. Benattia, 2023(respiratory)
15. Sandmann, 2021(abdominal compressions)
16. Chi, 2023 (fusions/ACDF) 
17. Daylor, 2023 (hope for hypermobility part 1)
18. Daylor, 2023 (hope for hypermobility part 2)
19. https://theschooltoolkit.org/about-the-toolkit/

Videos/Lectures: 

1. Journal Club: Aaron Kubal - EDS
2. Understanding the hypermobility spectrum with Izzy a Genetic Counseling Student
3. What a Patient With EDS has the Right to Expect From Their Doctor: Why Aren’t They Getting It?
4. Association between EDS and Gut Problems
5. Managing pain in EDS: Connecting the Dots Part 1 (Dr Pradeep Chopra)
6. Managing pain in EDSS: Connecting the Dots Part 2 (Dr Pradeep Chopra)
7. hEDS, HSD, Hypermobility differences | Is Hypermobility Normal? - Izzy Kornblau
8. hEDS Diagnostic Criteria on 5 different people with hEDS
9. Dr.Fraser 

Hypermobility Focused Blogs/Articles: 

1. HSD, JHS, hEDS… oh my!
2. hypermobilityMD
3. Hyperextension Dilema
4. The Hypermobile Chiro
5. JHS or Illness behaviour
6. ohtwist

Other Resources:

1. The Highly Sensitive Body Hub
2. Power Points from the leader of EDS echo for PT's
3. Monthly discussions with other Allied Health Professionals treating hEDS
4. hEDS diagnostic Checklist 
5. APA Hypermobility Lecture Series 2022 
6. Ehlers Danlos Tool Kit
7. The HMSA
8. Dr.Gensemer(@cortdoesscience) papers 
9. The Norris Lab 
10. UCI ebook
11. EDS providers list 
12. Boro Clinic Templates 

Dysautonomia encompasses a range of disorders that affect the autonomic nervous system. It is commonly observed as a comorbidity in patients with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD), and it can manifest with various symptoms such as brain fog, dizziness, heart palpitations, syncope, and more. There are numerous types of dysautonomia, including but not limited to Postural Orthostatic Tachycardia Syndrome (POTS), Neurocardiogenic syncope, Orthostatic Intolerance (OI), Familial dysautonomia (FD), Inappropriate Sinus Tachycardia, and several others.

Dysautonomia Papers:

1. Maya, 2021(Dysautonomia in hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders is associated with exercise intolerance and cardiac atrophy)
2. Fu and Levine, 2018 (Exercise and Non-Pharmacological Treatment of POTS)
3. Lei, 2020 (Non-Pharmacological and Pharmacological Management of Cardiac Dysautonomia Syndromes)
4. Zhang, 2020 (Individualized Treatment Strategies for Postural Orthostatic Tachycardia Syndrome in Children)
5. Raj, 2018 (Cognitive and psychological issues in postural tachycardia syndrome)
6. Attard, 2023 (Management of Psychiatric Conditions in Patients With Comorbid Postural Orthostatic Tachycardia Syndrome: A Literature Review and Case Vignette)
7. Gottschalk, 2023 (chronic fatigue)
8. Afrin, 2021(diagnosis) 
9. Suranjith, 2017 (EDS/MCAS)

Dysautonomia Resources:

1. https://thedysautonomiaproject.org/resources/
2. http://www.dysautonomiainternational.org/page.php?ID=36
3. https://www.potsuk.org/ 
4. https://www.healthrising.org/long-covid-resource-center/ 
5. https://www.standinguptopots.org/
6. https://www.otemily.com/potsclinicalcourse
7. https://www.legalnomads.com/mast-cells/

Mast Cell Activation Syndrome (MCAS) is a condition characterized by excessive and inappropriate release of histamine and other mediators from mast cells, resulting in a wide range of symptoms throughout the body.  MCAS(& other mast cell issues) commonly coexists with hEDS/HSD. The symptoms of MCAS encompass various manifestations, including allergic reactions, skin rashes, gastrointestinal disturbances, respiratory issues, cardiovascular symptoms, and more. Numerous triggers, such as specific foods, medications, environmental factors, and stress, can contribute to MCAS, necessitating personalized and intricate management strategies.

MCAS papers: 

1. Guelen, 2021(diagnosis) 
2. Arun, 2022 (MCAS and Long Covid)
3. Voss, 2022 (Neuropsych and MCAS)
4. Seneviratne, 2017 (MCAS and hEDS by EDS society)
5. Hubbard, 2023 (perioperative considerations)
6. Schmidt, 2022 (quality of life)
7. Afrin, 2019 (urogenital issues) 

MCAS Resources: 

1. https://hellsbellsandmastcells.com/
2. https://www.naughtylittlemastcells.com/get-started/ 
3. ‘Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity’ by Lawrence B. Afrin, M.D.
4. Dr. Afrins publications 
5. Hope For MCAS patients