Resources / Library
Welcome to the Hypermobility & Co. Resource Page
Whether you’re new to the world of Hypermobile Spectrum Disorder (HSD) and/or Hypermobile Ehlers-Danlos Syndrome (hEDS) or an experienced individual seeking additional resources… this page is for you.
This page is divided into three main sections, with relevant research and resources included within each section:
We know this list isn’t exhaustive and there is so much more great information out there. If you believe that something important should be included on this page, please send an email with your suggestion and we will add it if we determine it is a good fit!
I hope this resource page is helpful on your journey!
Social & Digital Resources
Below are a list of trusted social media accounts, podcasts and books related to hypermobility & co. that I hope will help deepen your knowledge during your hypermobility journey!
hEDS / HSD
New Must Reads (2025)
Hypermobility-specific research papers
- Simmonds, 2019 (exercise)
- Scheper, 2016 (muscle strength)
- Rombaut, 2011 (meds, surgery, PT)
- Nijs, 2006 (chronic pain & fatigue)
- Berglund, 2010 (patient experiences)
- Paepe, 2012 (EDS)
- Castori, 2017 (joint hypermobility)
- Csecs, 2022 (neurodivergence)
- Lohkamp, 2022 (UCI)
- Russek, 2023 (UCI)
- Benistan, 2023 (compression garments)
- Pietri-Toro, 2023 (cardiovascular manifestations)
- Estrella, 2023 (healthcare experiences)
- Benattia, 2023 (respiratory)
- Sandmann, 2021 (abdominal compressions)
- Chi, 2023 (fusions / ACDF)
- Daylor, 2023 — Hope for Hypermobility, Part 1
- Daylor, 2023 — Hope for Hypermobility, Part 2
- The School Toolkit
Videos / Lectures
- Journal Club: Aaron Kubal — EDS
- Understanding the hypermobility spectrum with Izzy
- What a Patient With EDS has the Right to Expect From Their Doctor
- Association between EDS and Gut Problems
- Managing pain in EDS — Part 1 (Dr Pradeep Chopra)
- Managing pain in EDS — Part 2 (Dr Pradeep Chopra)
- hEDS, HSD, Hypermobility differences — Izzy Kornblau
- hEDS Diagnostic Criteria on 5 different people with hEDS
- Dr. Fraser
Hypermobility-focused blogs / articles
Other resources
- The Highly Sensitive Body Hub
- Power Points from the leader of EDS ECHO for PTs
- Monthly discussions for Allied Health Professionals treating hEDS
- hEDS diagnostic checklist
- APA Hypermobility Lecture Series 2022
- Ehlers Danlos Tool Kit
- The HMSA
- Dr. Gensemer (@cortdoesscience) papers
- The Norris Lab
- UCI ebook
- EDS providers list
- Boro Clinic templates
Dysautonomia
Dysautonomia encompasses a range of disorders that affect the autonomic nervous system. It is commonly observed as a comorbidity in patients with hEDS or HSD, and it can manifest with symptoms such as brain fog, dizziness, heart palpitations, syncope, and more. There are numerous types of dysautonomia, including POTS, neurocardiogenic syncope, orthostatic intolerance (OI), familial dysautonomia (FD), inappropriate sinus tachycardia, and others.
Dysautonomia papers
- Maya, 2021 (dysautonomia, exercise intolerance, cardiac atrophy)
- Fu and Levine, 2018 (exercise & non-pharm POTS)
- Lei, 2020 (management of cardiac dysautonomia)
- Zhang, 2020 (POTS in children)
- Raj, 2018 (cognitive & psychological issues in POTS)
- Attard, 2023 (psychiatric conditions & POTS)
- Gottschalk, 2023 (chronic fatigue)
- Afrin, 2021 (diagnosis)
- Suranjith, 2017 (EDS / MCAS)
Dysautonomia resources
Mast Cell Activation Syndrome (MCAS)
MCAS is a condition characterized by excessive and inappropriate release of histamine and other mediators from mast cells, resulting in a wide range of symptoms throughout the body. MCAS commonly coexists with hEDS / HSD. Symptoms include allergic reactions, skin rashes, GI disturbances, respiratory issues, cardiovascular symptoms, and more. Triggers such as specific foods, medications, environmental factors, and stress can contribute to MCAS, requiring personalized management.
MCAS papers
Books
- Understanding Hypermobile Ehlers-Danlos Syndrome (purchase here)
- Ehlers Danlos: A Multidisciplinary Approach (purchase here)
- Disjointed (purchase here)
- Holding It All Together When You're Hypermobile (purchase here)
- Graceful Strength (purchase here)
Podcasts
- The Bendy Body Podcast: For Dancers with Hypermobility (listen here)
- Whealth: What's the Big Deal with Hypermobility? (listen here)
- Hypermobility Happy Hour (listen here)
- The Hypermobile Chiro guest podcasts (listen here)
- The POTScast (listen here)
- Hacking Hypermobility (listen here)